From PBS' FRONTLINE show...

http://www.pbs.org/wgbh/pages/frontline/somuchsofast/

This is documentary that I had tried watching, but unfortunately our PBS station aired it at an odd time. I have not seen it yet, but I do know what came out of this man getting ALS
The ALS Therapy Development Foundation.

If you have time, check it out. My family was deeply affected by this disease and we lost our Grandmother from it. So if you read this, check it out and help out any way you can.
Peace,
Rene